After 3 years, 3 months and 3 days Riley received his 3 organs. Thank you doesn't seem to be a big enough word for the family who choose organ donation. We will forever be grateful for their gift to Riley. The outpouring of support for Riley has been tremendous, thank you for your support and prayers.
To Donate Directly to the Smile4Riley House Fund: Click Here
Riley, the little engineer that could!
The O'Brien Family- Christian, Darren, Carol & Riley
(property of the O'Brien Family)
Riley was born April 4, 2008 with Heterotaxy Syndrome (Asplenia Type) with CAVC (common AV canal), Pulmonary Atresia, Right Ventricle to Aorta, TAPVR (total anomolous pulmonary venous return)(Infradiaphragmatic-unobstructed) and RRA s/p LMBTS (right aortic arch status post left modified BT shunt), patch augmentation of Pulmonary Artery bifurcation and TAPVR repair at 4 days old. He subsequently developed... stenosis of each of his pulmonary veins and has undergone over a dozen Cardiac Catheterization with dilation/stent placement in all four pulmonary veins. He has also had a stent placed in the BT shunt. As of today Riley only has his RUPV and LLPV remaining. The other two have completely occluded. As of November 2, 2009 Riley has been listed for a Bilateral Lung/Heart Transplant and requires continuous O2. He did have a failed "sutereless repair" of his PV's 7/14/08. Riley also had the Ladds procedure January 6, 2009 along with placement of a G Tube. Riley has endured 26 heart caths while waiting for his gift of life; these procedures are what is sustaining his life.
On March 4, 2013 we got the call organs for Riley! The new part of Riley's journey for life begins.
He still has a very long road ahead of him please continue to keep him in your thoughts and prayers.