Riley's path has taken an unexpected turn.  It appears that his very fragile veins are failing him.  It seems that his only option is a Heart/Lung Transplant.  As of Monday, November 2, 2009 Riley was offically listed for his transplant.  It has been over two years since Riley was listed.  Please pray he gets his new organs soon.

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Riley's Theme Song - "What I Am" - He is Strong!

The O'Brien Family- Christian, Darren, Carol & Riley

Riley was born April 4, 2008 with Heterotaxy Syndrome (Asplenia Type) with CAVC (common AV canal), Pulmonary Atresia, Right Ventricle to Aorta, TAPVR (total anomolous pulmonary venous return)(Infradiaphragmatic-unobstructed) and RRA s/p LMBTS (right aortic arch status post left modified BT shunt), patch augmentation of Pulmonary Artery bifurcation and TAPVR repair at 4 days old. He subsequently developed... stenosis of each of his pulmonary veins and has undergone over a dozen Cardiac Catheterization with dilation/stent placement in all four pulmonary veins. He has also had a stent placed in the BT shunt. As of today Riley only has his RUPV and LLPV remaining. The other two have completely occluded. As of November 2, 2009 Riley has been listed for a Bilateral Lung/Heart Transplant and requires continuous O2. He did have a failed "sutereless repair" of his PV's 7/14/08. Riley also had the Ladds procedure January 6, 2009 along with placement of a G Tube.

He still has a very long road ahead of him please continue to keep him in your thoughts and prayers.

Thank you for your continued support.